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Hair Shaft Defects - Trichothiodystrophy -
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
http://www.keratin.com/ag/ag013.shtml Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani -
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. [PDF]
http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf About Andrea’s Disease -
Personal history of a girl in France. [English/French]
http://monsite.wanadoo.fr/andrea2610/ Yahoo! Groups : Trichothiodystrophy Family Contact -
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.
http://health.groups.yahoo.com/group/TTD-support/ National Library of Medicine -
Trichothiodystrophy, the synonyms, a summary and a list of the major features.
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=omim&dopt=Detailed&tmpl=dispomimTemplate&list_uids=601675 A Parent's Account of Trichoththiodystrophy -
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
http://www.vp-it.com.au/sammyjoe/ Foundation for Ichthyosis and Related Skin Types -
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
http://www.scalyskin.org/content.cfm?ContentID=105&ColumnID=14 Jeans for Genes Day -
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
http://www.jeansforgenes.com/ Atlas of Genetics and Cytogenetics in Oncology and Haematology -
Description and links.
http://www.infobiogen.fr/services/chromcancer/Kprones/TrichothioID10042.html Yahoo! Groups : Trichothiodystrophy -
Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.
http://health.groups.yahoo.com/group/Trichothiodystrophy/
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