Ehlers-Danlos Syndrome

Ehlers-Danlos Hope - A Syrian patient gives a personal plea for better medical support and research.
http://ehler.8m.com

Ehlers-Danlos Syndrome Information - A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

"China Doll" Syndrome - Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
http://moondancer.150m.com/ehlers.html

Ehlers-Danlos Syndrome Medical Information - Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm

The Canadian Ehlers-Danlos Association - Working together to provide assistance, support and resources for people living with this rare genetic disorder.
http://www.ehlersdanlos.ca/

HealthWise: Ehlers Danlos Syndrome - Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
http://hw.healthdialog.com/kbase/nord/nord240.htm

Sandy Simmons' Connective Tissue Disorder Site - Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
http://www.ctds.info/

Hypermobility & Fibromyalgia Support Site - Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
http://anaiis.tripod.com/hmedfm/index.html

Oral Manifestations of Ehlers-Danlos Syndrome - EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html

Ehlers-Danlos National Foundation - Michiana Branch - Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
http://smackdabdesign.com/mednf/

Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
http://www.edfnz.org.nz

Ehlers-Danlos Syndrome Support Group - This site offers information for patients and doctors, plus links.
http://www.ehlers-danlos.org

American Massage Therapy Association - The Hypermobile Client/Therapist - Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
http://www.amtamassage.org/journal/olcott2.html

Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome - Symptoms, diagnosis and treatment of the condition.
http://www.arthritis.org/conditions/diseasecenter/eds.asp

The Swedish Ehlers-Danlos Syndrome National Association - The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
http://www.ehlers-danlos.se/indexEng.html

Coalition for Heritable Disorders of Connective Tissue - Research organization for genetic connective tissue disorders.
http://www.chdct.org

Department of Pathology - Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlossyndrome/

NORD: Ehlers-Danlos Syndrome - Information about EDS from the National Organization for Rare Disorders.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome

EDS Living - a Journal - Learn what it's like to live with EDS for this woman and her children by following her online journal.
http://edsliving.livejournal.com/

Arthritis Insight-EDS Tips for Surgery - If you or a family member with EDS needs surgery, read this and share it with your doctor.
http://arthritisinsight.com/medical/surgery/eds.html

Diagnose-Me: Treatments: Prolotherapy - Some EDS patients have obtained excellent results with prolotherapy treatments.
http://www.diagnose-me.com/treat/T85233.html

EDS Today - The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
http://www.edstoday.org/

Electronic Textbook of Hand Surgery - Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
http://www.eatonhand.com

The Hypermobility Syndrome Association - HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
http://www.hypermobility.org/

Ehlers-Danlos Syndrome, Philadelphia Chapter - Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
http://hometown.aol.com/daddio5600/

eMedicine - Ehlers-Danlos Syndrome - Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
http://www.emedicine.com/derm/topic696.htm

Hypermobility Portal - Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
http://hypermobility.objectis.net/