Tuberous Sclerosis

NORD: Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis

Team Tamara - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes information links and Tamara's health updates.
http://www.team-tamara.org

Tuberous Sclerosis Fact Sheet - Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm

Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
http://www.cincinnatichildrens.org/Programs_Services/229/index.asp

Tuberous Sclerosis - Lisa's Site - An incurable genetic condition that causes tumors to grow in various places in the body.
http://www.title14.com/ts/

Pediatric Oncall- Tuberous Sclerosis - Offers commonly asked questions about this disease.
http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp

Matthew's Site for Tuberous Sclerosis Awareness - Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
http://www.angelfire.com/la3/tsc/

Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm

Kolten's Tuberous Sclerosis Page - Describes his seizures and surgery.
http://www.kolten.homestead.com/Kolten.html

Tuberous Sclerosis Association - UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
http://www.tuberous-sclerosis.org/

Tuberous Sclerosis Alliance - US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
http://www.tsalliance.org/

MedlinePlus: Tuberous Sclerosis - A list of synonyms, a summary and major features.
http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html